Useful resources for patients and families living with epilepsy — information, support organisations, apps and trusted Australian links.
Australia’s leading epilepsy support organisation — information, practical resources, fact sheets, first aid training and a national helpline supporting people living with epilepsy across Australia.
epilepsy.org.au ↗
Victoria’s peak epilepsy body — support groups, community programs, education and a Victorian helpline for people living with epilepsy and their families.
epilepsyfoundation.org.au ↗
An engaging resource for learning more about epilepsy in general — including epilepsy research and information about living with epilepsy.
epilepsysparks.com ↗
Clear, reliable information on what epilepsy is — seizure types, diagnosis and treatment — from Epilepsy Action Australia.
epilepsy.org.au/about-epilepsy ↗
Step-by-step first aid for the main seizure types — essential reading for patients, families, carers and teachers.
Seizure first aid guide ↗Printable seizure first aid poster from the Epilepsy Foundation — for the fridge, workplace or classroom.
Download PDF ↗
How to record seizure activity, frequency, triggers and recovery — including paper diary templates, smartphone apps and tips on filming a seizure.
Recording seizures & diaries ↗
Download an appropriate epilepsy management plan from the Epilepsy Foundation. Useful for schools, workplaces and carers.
Epilepsy management plans ↗Planning to conceive, recently pregnant or at any stage of pregnancy with epilepsy? Register with the APR — an independent national register that helps determine which medications are safest for your baby while preventing seizures.
Register now ↗Navigating pregnancy and parenthood with epilepsy — guidance for planning, pregnancy and early parenthood.
epilepsy.org.au ↗Victorian Patient Transport Assistance Scheme — financial assistance for rural Victorians travelling more than 100km for specialist medical care. Covers travel costs and accommodation up to $45/night.
health.vic.gov.au ↗Isolated Patients Travel and Accommodation Assistance Scheme — NSW Government scheme providing financial assistance for patients travelling long distances for specialist care.
health.nsw.gov.au ↗
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